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The purpose of this study was to describe qualitatively the experience of parenting for mothers of a child with Down syndrome.
The aim of this paper was to describe the meaning of wellbeing for children and youth with disabilities from their perspective.
The purpose of this study was to describe qualitatively the experience of parenting for mothers of a child with Down syndrome and to explore spirituality.
Leisure participation for school-aged children with Down syndrome.
One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.
Rates of Down syndrome (DS) show considerable international variation, but a systematic assessment of this variation is lacking.
The aim of this study was to examine trends of Down syndrome (DS) in relation to maternal age and termination of pregnancies (ToP) in 20 registries
This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents.
Our vision is to increase awareness and improve outcomes for children with movement disorders and other neurodevelopmental conditions impacting on motor function.
We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim to translate our research into resources to support families, carers and clinicians.